Published on: 01 Jul, 2019 - Read Time: 2 minutes Minutes
In your Own Words: Kerry’s Story
I had ongoing back pain for a year or so but the stabbing in the calf was the worse pain I have ever experienced. I was back and forth to the doctors and had several visits to our local hospital because I was in so much pain and could barely walk, fortunately one day a doctor at the hospital was very understanding and sympathetic and referred me for a MRI scan.
I had my scan on a Friday morning and that afternoon I had a phone call from a spinal nurse who said they needed to see me urgently, I was seen in clinic and told I had a Cauda Equina (this meant nothing to me) and was asked lots of questions about loss of sensation etc. and was told I would need an urgent major operation, I had a herniated disc which was causing severe nerve compression.
I was admitted to hospital a couple of days later and had a L4/L5 decompression with stabilisation inserted in my back. I was in theatre for hours and had to have a blood transfusion. After spending a week in hospital I returned home and recovered slowly, but after a couple of years I started getting a numbness and tingling in my left foot and calf.
I visited my doctor who referred me again for a MRI scan but no compression was shown, although my upper and lower discs are not great. Unfortunately I have been left with nerve damage in this leg which led me to have to give up work due to the pain and my loss in mobility. I started to feel very isolated and incredibly lonely being at home all day everyday so I started helping at my son’s school.
I really enjoyed helping the children and it is something I can do where I can pace myself and sit or stand as I wish. Although I’m in pain I am so much happier that I am out of my house and helping others.
If Kerry’s story has inspired you to share your own experiences with Cauda Equina Syndrome then please contact us, we’d love to hear from you!