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New partnership to strengthen support for people with spinal cord injuries  

We’re joining forces with Spinal Injuries Association (SIA) so we can give even better advice and support to those living with Cauda Equina Syndrome.

The landmark move will give people living with CES greater access to a wider range of services – improving care and saving more lives.

Both we and SIA share the same goal of helping people with spinal cord damage to access the right information, find support and link up with other people to share experiences.

Our members will benefit from a range of additional services – including immediate access to SIA’s life-saving specialist nursing services and care. And members will be offered psychological support delivered by those who can deliver it best – peers living with a spinal injury. Those belonging to CES will also be able to access professional counselling services.

Michael Piccirillo, a neurological trainer and Chair and Trustee of CES UK said. “When we approached SIA to explore how we might become part of their association, our aim was to support more people living with CES with services they have told us they need, such as specialist clinical advice, advocacy to fight for services, counselling and mental wellbeing services.

“SIA offers all of these and more. We had no hesitation in choosing them.”

 The website will continue as the hub for information, advice and support for people with CES, but now with added links to the various clinical, support and advocacy services offered by SIA, as will their social media channels. The charity’s shop and office in Syston, Leicestershire will also continue under the existing management.

Nik Hartley OBE, CEO of SIA said, “We’ve made a pledge to build a network of partners so everyone affected by any type of spinal cord injury gets the support they need.

“This is a truly ground-breaking opportunity to invest in the amazing work of CES UK that has the potential to offer a lifeline to anyone, anywhere living with CES.”

Bridge McFarland LLP, a legal firm with an internationally recognised team of clinical negligence solicitors, has agreed to continue to fund the work being done to support people affected by CES.  Said Claire Grieves, Bridge McFarland LLP: “Bridge McFarland LLP has supported CES UK for many years and, when we heard about the plan, we immediately agreed to make a financial commitment to ensure people affected by CES get the best possible care and support, now and in the long term”.