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Cauda Equina Syndrome UK to join forces with Spinal Injuries Association

Dear Member,

I am very pleased to announce that we are joining forces with the Spinal Injuries Association (SIA), to become part of their Association.  

As many of you will know CES UK was set up as a charity in 2012 to serve and support people with Cauda Equina Syndrome (CES).  Our aim as a charity has always been to make sure people living with CES can get the best information and support as well as an opportunity to connect with other people with CES and to share and learn from the community. 

When we approached SIA to become a part of their Association, our aim to was to expand the support offered to people living with CES, specifically in the areas of specialist clinical advice and information, advocacy to fight for services, counselling and mental wellbeing services.

We were very pleased that SIA agreed to our proposal.  The move means we will immediately be able to expand the support offered to every person living with CES, while continuing to offer a place for bespoke support, information and peer interaction for you all, living with CES.

In practice what it means is that you as a CES UK member will automatically become a member of SIA and be able to avail those services immediately and directly through CES as well as of course through SIA itself.  The website www.caudaequinauk.org.uk will continue as the hub for information, advice and support, but now with added links to the various clinical, support and advocacy services offered by SIA.  Our social media pages, including our Facebook group, will be increasingly user-led and remain dedicated to the needs of people with CES. The charity’s shop and office in Syston, Leicestershire, will continue under the existing management. 

Our friends at SIA will be in touch shortly with further news including regarding your membership of SIA which will be effective from 15 January. Of course, if you do not wish your details to be shared with SIA, please let us know as soon as possible.

If you have any questions related to this announcement, please contact us on: info@caudaequinauk.org.uk.

Yours sincerely,