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Welcome to
Cauda Equina UK

A voice for those affected by Cauda Equina Syndrome in the UK


We have joined Spinal Injuries Association to provide a lifetime of support to every CES person.

Our Services

Our mission is to prevent Cauda Equina Syndrome by raising awareness of the disability across the UK and make the condition a household name by 2022.

Join Our Community
of Support

Become a member of Spinal Injuries Association and get a lifetime of support.

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Advice and Support
for You

Recently diagnosed or need more info? Find out about symptoms and support

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Support for

Read about our mission to raise awareness of CES in healthcare organisations

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The Story of Cauda Equina UK

‘Bringing together people affected by Cauda Equina Syndrome’

Cauda Equina Syndrome UK has joined forces with Spinal Injuries Association with the shared aim of supporting every person living with CES to get the support they need to lead a fulfilled and active life.

Our shared aims are to:

  • Improve standards of care leading up to, and following, diagnosis of CES
  • Give HCPs a patient perspective so they can gain a better understanding
  • Raise awareness of CES Red Flag Symptoms
  • Support our members and provide reliable accurate information

Our vision is that everyone diagnosed with CES has access to quality information, informed advice and the right level of support.


Latest News & Blogs

Keep up to date with the latest CES news and events across the UK.

New partnership to strengthen support for people with spinal cord injuries  

We’re joining forces with Spinal Injuries Association (SIA) so we can give even better advice and support to those living with Cauda Equina Syndrome.

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Cauda Equina Syndrome UK to join forces with Spinal Injuries Association

As many of you will know CES UK was set up as a charity in 2012 to serve and support people with Cauda Equina Syndrome (CES).  Our aim as a charity has always been to make sure people living with CES can get the best information and support as well as an opportunity to connect with other people with CES and to share and learn from the community. 

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Coronavirus and CES – We’re here to help

We understand what a difficult and constantly changing time this is for everyone and especially those affected by underlying health conditions and for our members Cauda Equina Syndrome. In order to support our members, we are aiming to provide as much information as we can and details of where help can be accessed.

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“The first step towards change is awareness. The second is acceptance.”