Free Legal Helpline: 0800 987 8554 General Helpline: 0800 989 0053 Contact us

We have changed our privacy policy to keep up to date with new data protection laws, you can read it here

Welcome to
Cauda Equina UK

A voice for those affected by Cauda Equina Syndrome in the UK

About CESUK Visit Forums

We are pleased to be working with the
Spinal Injuries Association to support our members

Our Services

Our mission is to prevent Cauda Equina Syndrome by raising awareness of the disability across the UK and make the condition a household name by 2022.

Join Our Community at
The CESUK Forums

Sometimes you just need someone to talk to. Become a member for free and join our forums to link with CES sufferers.

Find Out More

Explore Advice and Support
for You

Whether you have been recently diagnosed or are doing further research, find out more about Red Flag Symptoms and what support is available in the UK

Find Out More

Explore Advice and Support
for Professionals

Our mission is to raise awareness of Cauda Equina Syndrome in healthcare organisations. View and request our literature here.

Find Out More

The Story of Cauda Equina UK

‘Bringing together people affected by Cauda Equina Syndrome’

The Cauda Equina Syndrome UK Charity provides support, education and practical advice to individuals affected by CES and their families, and heath care professionals (HCPs) in the UK.

Our aims

  • Improve standards of care leading up to, and following, diagnosis of CES
  • Give HCPs a patient perspective so they can gain a better understanding
  • Raise awareness of CES Red Flag Symptoms
  • Support our members and provide reliable accurate information

Our vision is that everyone diagnosed with CES has access to quality information, informed advice and the appropriate level of support.

About CESUK Visit Forums

Latest News & Blogs

Keep up to date with the latest CES news and events across the UK.


In Your Own Words: Emily’s Story

Next in this series of CES awareness campaign articles is Emily's story. Emily contacted us over Christmas, eager to share her experience after reading all the stories we published last year. She suffered from a bad back since having her first child in 2012 and after this slowly worsened over a few years, red flag symptoms started to present.

Read More
Lee's Story

In Your Own Words: Lee’s Story

We begin our 2019 CES awareness campaign with Lee's story. Lee got in touch with us before Christmas, keen to share his experiences of Cauda Equina Syndrome with us. He first became aware of Cauda Equina Syndrome through a friend, before he was struck down with it himself.

Read More
Thank you

Thank you for making our best fundraising year so far!

Thank you for your donations, fundraising, and the on going support of our charity shop. This has made 2018 the best fundraising year so far, since the re-launch of the charity.

Read More

“The first step towards change is awareness. The second is acceptance.”