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Welcome to
Cauda Equina UK

A voice for those affected by Cauda Equina Syndrome in the UK

About CESUK Visit Forums

We are pleased to be working with the
Spinal Injuries Association to support our members

Our Services

Our mission is to prevent Cauda Equina Syndrome by raising awareness of the disability across the UK and make the condition a household name by 2022.

Join Our Community at
The CESUK Forums

Sometimes you just need someone to talk to. Become a member for free and join our forums to link with CES sufferers.

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Explore Advice and Support
for You

Whether you have been recently diagnosed or are doing further research, find out more about Red Flag Symptoms and what support is available in the UK

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Explore Advice and Support
for Professionals

Our mission is to raise awareness of Cauda Equina Syndrome in healthcare organisations. View and request our literature here.

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The Story of Cauda Equina UK

‘Bringing together people affected by Cauda Equina Syndrome’

The Cauda Equina Syndrome UK Charity provides support, education and practical advice to individuals affected by CES and their families, and heath care professionals (HCPs) in the UK.

Our aims

  • Improve standards of care leading up to, and following, diagnosis of CES
  • Give HCPs a patient perspective so they can gain a better understanding
  • Raise awareness of CES Red Flag Symptoms
  • Support our members and provide reliable accurate information

Our vision is that everyone diagnosed with CES has access to quality information, informed advice and the appropriate level of support.

About CESUK Visit Forums

Latest News & Blogs

Keep up to date with the latest CES news and events across the UK.

Lyn

In Your Own Words: Lyn’s Story

The latest addition to our CES awareness campaign is Lyn's story. Lyn emailed us with her experience of dealing with Cauda Equina Syndrome, and how lonely and frustrating it can be. She is keen to promote awareness of the condition and hopes that she can help those at the beginning of their journey having experienced a lack of support herself.

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Katrina

In Your Own Words: Katrina’s Story

Next up for our CES awareness campaign is Katrina's story. Katrina contacted us via Facebook, keen to share her experience to help raise awareness. Her story goes to show that no matter how fit you are CES can affect you.

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Kerry

In your Own Words: Kerry’s Story

This month's story has been submitted by Kerry. Read on as she explains her experience of Cauda Equina Syndrome, perhaps you have been through similar?

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“The first step towards change is awareness. The second is acceptance.”

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