A voice for those affected by Cauda Equina Syndrome in the UK
We are pleased to be working with the
Spinal Injuries Association to support our members
Our mission is to prevent Cauda Equina Syndrome by raising awareness of the disability across the UK and make the condition a household name by 2022.
Sometimes you just need someone to talk to. Become a member for free and join our forums to link with CES sufferers.
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Whether you have been recently diagnosed or are doing further research, find out more about Red Flag Symptoms and what support is available in the UK
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Our mission is to raise awareness of Cauda Equina Syndrome in healthcare organisations. View and request our literature here.
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‘Bringing together people affected by Cauda Equina Syndrome’
The Cauda Equina Syndrome UK Charity provides support, education and practical advice to individuals affected by CES and their families, and heath care professionals (HCPs) in the UK.
Our aims
Our vision is that everyone diagnosed with CES has access to quality information, informed advice and the appropriate level of support.
Keep up to date with the latest CES news and events across the UK.
A treat for those who enjoy a good podcast this month as we continue our 2019 CES awareness campaign. Adam is recording his podcasts as "a kind of coping tool" and hopes that it can offer help to others going through a similar recovery. In his words "It's totally unscripted and with all the morphine and tramadol probably a little illegible and confusing". Enjoy!
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Next in this series of CES awareness campaign articles is Emily's story. Emily contacted us over Christmas, eager to share her experience after reading all the stories we published last year. She suffered from a bad back since having her first child in 2012 and after this slowly worsened over a few years, red flag symptoms started to present.
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We begin our 2019 CES awareness campaign with Lee's story. Lee got in touch with us before Christmas, keen to share his experiences of Cauda Equina Syndrome with us. He first became aware of Cauda Equina Syndrome through a friend, before he was struck down with it himself.
Read More“The first step towards change is awareness. The second is acceptance.”
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