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Welcome to
Cauda Equina UK

A voice for those affected by Cauda Equina Syndrome in the UK

About CESUK Visit Forums

We are pleased to be working with the
Spinal Injuries Association to support our members

Our Services

Our mission is to prevent Cauda Equina Syndrome by raising awareness of the disability across the UK and make the condition a household name by 2022.

Join Our Community at
The CESUK Forums

Sometimes you just need someone to talk to. Become a member for free and join our forums to link with CES sufferers.

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Explore Advice and Support
for You

Whether you have been recently diagnosed or are doing further research, find out more about Red Flag Symptoms and what support is available in the UK

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Explore Advice and Support
for Professionals

Our mission is to raise awareness of Cauda Equina Syndrome in healthcare organisations. View and request our literature here.

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The Story of Cauda Equina UK

‘Bringing together people affected by Cauda Equina Syndrome’

The Cauda Equina Syndrome UK Charity provides support, education and practical advice to individuals affected by CES and their families, and heath care professionals (HCPs) in the UK.

Our aims

  • Improve standards of care leading up to, and following, diagnosis of CES
  • Give HCPs a patient perspective so they can gain a better understanding
  • Raise awareness of CES Red Flag Symptoms
  • Support our members and provide reliable accurate information

Our vision is that everyone diagnosed with CES has access to quality information, informed advice and the appropriate level of support.

About CESUK Visit Forums

Latest News & Blogs

Keep up to date with the latest CES news and events across the UK.

Dave's Story

In Your Own Words: Dave’s Story

This month in our awareness campaign for Cauda Equina Syndrome we bring you Dave's story. Dave sent his story to us via email at info@caudaequinauk.org.uk and wants his story to help others in similar situations. What started for Dave as a normal day at work ended up changing his life after one slip on a ladder.

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Adam's Story

In Your Own Words: Adam’s Story

A treat for those who enjoy a good podcast this month as we continue our 2019 CES awareness campaign. Adam is recording his podcasts as "a kind of coping tool" and hopes that it can offer help to others going through a similar recovery. In his words "It's totally unscripted and with all the morphine and tramadol probably a little illegible and confusing". Enjoy!

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Emily

In Your Own Words: Emily’s Story

Next in this series of CES awareness campaign articles is Emily's story. Emily contacted us over Christmas, eager to share her experience after reading all the stories we published last year. She suffered from a bad back since having her first child in 2012 and after this slowly worsened over a few years, red flag symptoms started to present.

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“The first step towards change is awareness. The second is acceptance.”

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